I have, for the past two years, been dealing with serious issued due to my asthma. Last year at the beginning of the year I began taking some new medication. Xolair, which is given every two weeks, two shots at a time. My Pulmonologist also prescribed for me Combivent and the ProAir HFA. Now, these two are inhalers, and he had told me to use the Combivent for maintenance. I did this for close to a year. October of last year, I realized, my condition was not getting any better. I had decided it might be time for a new doctor. So, I put my auto deliveries of Xolair on hold and changed doctors. I’ve had to wait to see this new doctor because he was not taking in new patients until now.
Today was my first appointment. I am both angry and relieved. I am angry because I came to learn that what I was initially told was a maintenance medication, Combivent, is actually an emergency inhaler. Combivent is a combination of two drugs, one of which is albuterol, ProAir is albuterol. I’ve been double dosing myself basically for nearly a year. It’s been so bad that I’ve been using these inhalers 6 to 8 times a day. It’s no wonder I’m tired all the time!!! Honestly, I’m surprised I’ve not dropped dead of a heart attack.
My new doctor gave me a new maintenance medication, along with instructions to ONLY use one inhaler and only as needed. He also called me a little while ago because he’d forgotten to tell me to begin taking Allegra and also to tell me he called in medication to the pharmacy for post nasal drip. He took x-rays and even did a pulmonary breathing test in his office.
I finally feel like I’m actually going to start getting better! You really have to be your own advocate. I wish I had done this sooner. I may not have struggled so much with my breathing.
in 2015 I moved out of the condo I was renting and wound up having to move to the only place I could find on such short notice which was an efficiency. Actually, it’s a master bedroom which is closed off from the main house. This wasn’t ideal, but I needed a place to live that would let me have my cats and dog. I thought, okay this is just temporary, 6 months, maybe a year max. 3 years later, I’m still there. Just can’t afford to move.
But, on the up-side, the place is small so I really don’t have to spend too much time keeping it clean and picked up. AND, free wi-fi. I don’t have cable, which I thought would be torture, but I’ve actually come to appreciate not having to spend that obscene amount of money monthly for 500 channels, of which I only watch 5.
What do I watch? I have Netflix, of course, Amazon Prime, YouTube Red, and I also have a monthly subscription for Audible. I’m a little late in the game, but I have discovered Podcasts. I’ve been without cable for 3 years, and I really haven’t missed it. At first, though, I was thinking, “OMG what the hell am I going to do now?” But really, I love not having cable. In fact, when I finally have a normal place to live I won’t be getting cable again. I will set myself up with a good internet plan and that’s it.
If anyone is thinking about cutting the cable cord, DO IT!!! You won’t be sorry.
I had to go back to last year to see when the last time I posted. DAMN! It’s been a while. What’s worse is that in that last blog post I had intended to actually post more often. I need to stop these once a year posts. Seriously!
So, here we are, and I’m back. I spent most of last year dealing with my asthma. I’ve been taking high doses of prednisone for about a year. If you have never taken this then let me tell you, it sucks! I’ve gained well over 25 pounds and I haven’t seen my jawline in over a year. Moon face and a hump at the base of my neck, not very attractive. I’m also using two different inhalers on a daily basis as well as a medication called Xolair. The Xolair was supposed to help me cut back on the other medications, mainly the prednisone, but it didn’t help. After about a year of this, and only being able to see the pulmonologist occasionally, I decided to just see someone else in the hopes that another doctor can at least give me some answers as to what is going on and not just pump me with medication.
Now, in other news. What else is new, well my hair is thinning. Yup, my hair that I’ve always loved and been so proud of how full and thick it was, is fucking thinning and falling out. At first, it wasn’t too bad, but in the past four months, it’s just gotten really bad. The texture also changed too, and this I blame on the prednisone, as the hair loss. It’s frizzy all the time, nothing I could do helped, so I finally just cut it short. Oddly enough, this has helped a bit. I’ve also been wearing wigs, which I have found to be something I enjoy. I’ll do some posts on the ones I have in the future and post some photos.
All of the furry-butts are doing well and I’m still living in that studio/bedroom efficiency. I am hoping to find a larger place soon. I’m really in need of some more room, and some windows!!! I’d love to have a kitchen again, and a living room, and did I say windows?
I’m also considering revamping the page a bit, but I still like the theme I have so i may just leave it.